About the Alzheimer's Foundation of America (AFA)

Alzheimer's Foundation of America

The mission of the Alzheimer’s Foundation of America (AFA) is “to provide optimal care and services to individuals confronting dementia, and to their caregivers and families—through member organizations dedicated to improving quality of life.”

AFA History

AFA, based in New York, was founded by a consortium of organizations to fill the gap that existed on a national level to assure quality of care and excellence in service to individuals with Alzheimer's disease and related illnesses, and to their caregivers and families.

 

Our focus is "Caring for the Nation...One Person at a Time."
AFA currently unites more than 1,700 member organizations from coast-to-coast that are dedicated to meeting the educational, social, emotional and practical needs of individuals with Alzheimer's disease and related illnesses, and their caregivers and families. Under AFA's umbrella, these organizations collaborate on education, resources, program design and implementation, fundraising campaigns and advocacy—all resulting in better care for those affected by the disease. For a listing of AFA member organizations, click here.

AFA believes that by raising awareness of the disease and educating
healthcare professionals and the public at large, we will:

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AFA Services

AFA offers a wealth of programs, services and initiatives nationwide. These include:

Toll-free hot line - 866.AFA.8484 (866.232.8484)

When you reach out to AFA, licensed social workers and other professionals knowledgable about Alzheimer's disease and related illnesses will answer your call. They will respond to your questions, provide counseling and direct you to appropriate local resources to meet your needs. The hot line operates during regular business hours—Monday through Friday, 9 a.m. to 5 p.m. ( Eastern ). Social workers are available to speak with you via phone and e-mail, as well as Skype and live chat; connect to Skype and live chat at www.carecrossroads.org. At all other times, please leave a message, and we will return your call.

AFA Web site - www.alzfdn.org

This site includes information about Alzheimer's disease and related illnesses, caregiving strategies and behavioral issues, as well as daily news about Alzheimer's disease, and links to AFA members and AFA divisions.

Care Crossroads—www.carecrossroads.org
AFA’s new Care Crossroads Web site is an innovative, interactive "community of care" that helps family caregivers meet other caregivers, learn about the brain disorder and connect "live" with experts. Visitors can access AFA’s licensed social workers via Skype and live chat from 9 a.m. to 10 p.m. (Eastern). In addition, in partnership with Inspire, an online multi-disease health and wellness support community, caregivers can talk with like-minded peers on an active discussion board. Click here to join the discussion.

Consumer publications

Designed specifically for caregivers of individuals with Alzheimer’s disease and related illnesses, AFA’s comprehensive educational materials and consumer publications include brochures on a variety of topics, such as successful aging, caregiving strategies and young-onset dementia, and care ADvantage, a free quarterly magazine for caregivers of people with Alzheimer's disease and related illnesses. Some materials are available in both English and Spanish.

National initiatives

AFA’s annual awareness-raising initiatives include:

AFA divisions

AFA E-store

AFA’a E-store offers a variety of unique and exclusive products aimed at raising awareness and enhancing knowledge of Alzheimer’s disease and related illnesses. You’ll find an exclusive line of sterling silver jewelry, caregiver DVDs filled with practical tips, and merchandise related to the heartfelt AFA Quilt to Remember. Proceeds support AFA’s programs and services. To shop, click here.

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AFA Leadership

Click here to read about AFA's President

Click here to view AFA’s Board of Trustees.

Click here to view AFA’s Medical and Scientific Advisory Board.

Click here to read about AFA's Senior Brain Health Advisor.

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AFA Membership

AFA’s membership includes:

While their titles may vary, all of AFA’s members share one vital factor: a commitment to dementia care. Click here to locate an AFA member organization.

AFA membership is open to any organization dedicated to aiding individuals with Alzheimer's disease and related illnesses, and their caregivers and families. We welcome entities of any size budget and staff, nonprofit and for profit. As AFA members, each organization continues to operate independently while benefiting from belonging to a larger, national framework. AFA offers two membership levels: members and associate members. Click here to join AFA.

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AFA Financial Report

AFA is a 501(c)(3) nonprofit organization. We are strongly committed to maximizing funds spent on programs and services, and minimizing administrative and fundraising expenses.

Click here for more financial information.

AFA is the proud recipient of the "BBB Wise Giving Alliance National Charity Seal." Click here for more information.

AFA is the proud recipient of the “Best in America” Seal of Excellence, designating AFA as one of the top charities in America. Click here for more information.

To donate to AFA, click here.

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AFA Media Center

Click here to read current press releases issued by AFA.

Members of the media may direct inquiries to:

Amanda Hirschhorn, Communications Specialist

866.232.8484

media@alzfdn.org

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AFA Privacy Statement

AFA is committed to protecting your privacy when visiting our network of Web sites.

This is the AFA Internet Privacy Statement. Together with the Policy on Collection and Use of Personal Information, this privacy statement discloses the privacy practices for AFA’s network of Web sites: www.alzfdn.org, www.afateens.org, www.alzprevention.org, www.candlelighting.org, www.careprofessionals.org, www.excellenceincare.org, www.nationalmemoryscreening.org, www.fortheloveofgeorge.org.

Information Collection and Use

AFA is the sole owner of the information collected on this site. We will not sell, share or rent this information to others in ways other than those outlined in this statement. AFA collects information from our users at several different points on our Web site. Personal information provided by users will be used by AFA to improve the site and provide a more personalized experience for the user, but information which identifies a specific individual will not be disclosed to others without the user’s permission unless necessary to provide services that the user has requested.

Registration

It is optional for a user to complete a registration form. If a user chooses to complete one, a user is required to give certain information (such as name and email address). This information is used to contact users about the services on our site for which they have expressed interest. It is optional for the user to provide additional demographic information (such as income level and gender), but encouraged so we can provide a more personalized experience on our site.

Cookies

A cookie is a piece of data stored on the user's hard drive containing information about the user. Usage of a cookie is in no way linked to any personally identifiable information while on our site. Once the user closes the browser, the cookie simply terminates. For instance, by setting a cookie from our site, the user would not have to log in a password more than once, thereby saving time while on our site. If users reject the cookie, they may still use our site. Cookies can also enable us to track and target the interests of our users as they visit different sections of our site.

Log Files

We use IP addresses to analyze trends, administer the site, track users' movement, and gather broad information for aggregate use. IP addresses are not linked to personally identifiable information.

Sharing

We will share aggregate information with our partners and advertisers. This aggregate information does not contain personally identifiable information and therefore cannot identify any specific individual.  We use an outside credit card processing company to bill users for goods and services. These companies do not retain, share, store or use personally identifiable information for any secondary purposes. We partner with other parties to provide specific services such as a secured site for financial transactions. When the user signs up for these services, we will share names or other contact information that is necessary for the third party to provide these services with the permission of the user. These parties are not allowed to use personally identifiable information except for the purpose of providing these services.

Links

This Web site contains links to other sites. Please be aware that AFA is not responsible for the privacy practices of such sites. We encourage our users to be aware when they leave our site to read the privacy statements of every Web site that collects personally identifiable information. The AFA privacy statement applies solely to information collected by AFA’s Web site.

Newsletter

If a user wishes to subscribe to our push email technology or newsletters, we ask for contact information such as name and email address.

Surveys and Contests

From time to time our site requests information from users via surveys. Participation in these surveys is completely voluntary and the user therefore has a choice whether or not to disclose this information. Information requested may include demographic information (such as name, shipping address, zip code or age level. Survey information will be used for purposes of monitoring or improving the use and satisfaction of this site, as well as for publicity and advocacy purposes.

Security

This Web site takes every precaution to protect our users' information. All of our users' information is restricted in our offices. Only employees who need the information to perform a specific job (e.g., our finance department) are granted access to personally identifiable information. The servers used to store personally identifiable information are kept in a secure environment. If you have any questions about the security at our Web site, you can use our contact form.

Supplementation of Information

In order for this Web site to enhance its ability to tailor the site to an individual's preference, we might combine information about the purchasing habits of users with similar information from other partners to create a personalized user profile. The personalized user profile will be used to improve the site and provide a more personalized experience for the user, but will not be disclosed to others.

Site and Service Updates

We also send the registered site users service announcement updates. Users are not able to unsubscribe from service announcements, which contain important information about the service. We communicate with the user to provide requested services and account information via email or phone.

Correcting and Updating Personal Information

If a user's personally identifiable information changes (such as a zip code), or if a user no longer desires our service, we will make our best effort to provide a way to correct, update or remove that user's personal data from our records, but this may require additional effort as AFA works to synchronize all customer data sources. This can usually be done on the member information page or by emailing our Customer Support. Users can also reach us at 866.232.8484.

Choice/Opt-Out

Our users are given the opportunity to "opt-out" of having their personal information used by third parties for purposes not directly related to our site at the point where we ask for the information. For example, our informational email messages have an "opt-out" mechanism so users who register can change their mind and be removed form receiving future informational messages. In some instances, AFA requires users to “opt-in” for their personal information to be used.

Users who no longer wish to receive our newsletter or promotional materials from our partners may opt-out of receiving these communications by following the "unsubscribe" instructions in the email message. Users of our site are always notified when their information is being collected by any outside parties. We do this so our users can make an informed choice as to whether or not they should proceed with services that require an outside party. 

Notification of Changes

If we decide to change our privacy policy, we will post changes on our home page so our users are always aware of the information we collect, the ways we use it, and any circumstances under which we disclose it. If at any point we decide to use personally identifiable information in a manner different from that stated at the time it was collected, we will notify users by way of email. Users will have a choice as to whether or not we use their information in this different manner. We will use information in accordance with the privacy policy under which the information was collected.

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